Little baby Charlie Wagstaff a local adorable little toddler was born with a rare genetic disorder called Congenital Central Hypoventilation Syndrome (CCHS link:- https://www.cchsuk.org/) which means he stops breathing every time he falls asleep. Only one thousand people in the world have been diagnosed with this lifelong and life threatening condition, which has completely turned his Mum and Dads ( Sophie and Chris) life around. Charlie spent four Months in hospital before coming home with lots of equipment and carers who watch over him every night.
Charlie wears a mask attached to a ventilator every time he goes to sleep – his life support machine. His oxygen and carbon dioxide levels have to be closely monitored to keep him safe. Charlies mask is starting to cause facial deformities, so any money raised will go towards a bespoke mask which will hopefully allow his face to develop properly.
Steve the |Fox & Hounds ‘Landlord” will be performing his Neil Diamond tribute act and hopes with your help to be able to raise as much money as we can with ticket sales and a raffle with lots of fantastic prizes to be won.
Charlie is a very special child so we are also trying to raise funds via ‘just giving’. If you are unable to support the event but really want to help we would be grateful if you could donate to Charlie Wagstaff page on ‘Just Giving’, offer a raffle gift or donate what you can at the Pub. Thank you very much
Steve & Angie